Korbin Caillou Brown's Guest Book

December 30, 2006 Name: Brandy Peterson Hello. Our daughter, Taylor, is one of the Rhabdoid Angels. Well, it was making me very sad that all of the angels were not up on the new page, so Ken very kindly allowed me to help with adding them on there. It's taken three days, but I just wanted everyone to know that all of the Angels are now up on the Angel page.

December 15, 2006 Name: Dr Sri Ranga Location: K.L., Malaysia I feel the pain. My 1 year old nephew was dx as having a brain tumour 3 weeks ago (ATRT) and is still in ICU - comatose (had a seizure) since even before the surgery. He was vomiting for 2 weeks prior to that... and yet all we doctors missed the obvious until it was too late.

October 28, 2005 Name: THMS Location: United Kingdom I like the name you chose.

March 8, 2005 Name: Bernadette Location: Morgantown, WV Hi, This cancer is just so sad because of the little lives it takes and the suffering they endure. Korbin was a lovely baby. I lost my godson Znae Gardner to this horrible cancer. God Bless, Bernadette

February 23, 2005 Name: S Dennehy Hi, I am emailing you for help. I am the aunt of Anthony Tuzzo, who passed away from Rhabdoid last March. Wea re currently asking all parents, family, and friends to write a letter to Oprah about your child and your experience withRhabdoid. We feel that this is a way to bring awareness to the country that this type of disease does exist and needs to be researched. I you can find the time, please write a letter and sent it to my email address. Thank you forconsidering and God Bless.

July 29, 2004 Name: Marie Ouidin Location: Marseille on the South Est of France Dear Parents of Korbin, The history of Korbin touched a lot me. I too, lost my girl Camille (32 months) on January 13th, 2004 of the tumor ATRT. I feel so sad, so abandoned. Aspace, and immense lack. We had so not enoughtime to share moments of love and happiness. And in spite of the years which cross the doctors do not still have find the treatment which can be cured of this type of turmor. Even not 5 months apris the end of the cure of chemotherapy andradiotherapy, she relapsed. We had a protocol is saying "last-born", is used in all France and Europe. There are one in USA but I feel understand this protocol have the same result as Camille had. When she relapsed, there nothingthere are only a palliative care. What dicourages me, it is that nevertheless this time, they did not find the treatment which goves of checks forecast. If you research and you had got any news, or want information by me. You cancontact me, that would really please me. The Mom of and attractive small 32-month-old angel who is from the south is from France to Marseille and is called Camille but who wanted to be called Camille OUDIN the surname). MY PRAYERS ARE WITHHIM TOO.

February 25, 2003 Name: Meagan Morton Location: Clinton, MS Hey, Ann I am so sorry to hear about Korbin. After I saw this website I started to cry. But will see you @ Home!!!!

February 23, 2003 Name: Michael Atlasov Location: Russia Subject: We remember The year has passed. I am calmed by that there he is better and easier. I am quiet for them. How you have conducted this yes? Whether you have any communication with other ARTT or different fatal families?

January 1, 2003 Name: Mamaw Vickie Brown Location: Pearl, MS Your Papaw and I celebrated your birthday my littlest one. I visited your grave for the first time since you went home to God. I hope you like the flowers and butterfly that we brought. I miss you so very much it hurts. But I know you are in good company and at times I feel you here with me, especially when Sam and I play together. I felt you playing with some of the other babies where you are and that is good and gives my heart ease. Give my loved ones up there for me kisses and hugs. I will always remember you, my littlest one.

October 9, 2002 Name: Ruth Kilcrease My sympathies on your loss. Its an unimaginable one for anyone who has a love for children. My prayers are with you.

September 10, 2002 Name: Kristi Marie Location: Hitkicker Country He was so beautiful. Thank you for sharing his picture.

June 11, 2002 Name: Jeanne Brown Location: Wapakoneta, OH Still thinking of Korbin. He has not been forgotten. I will continue to pray for your healing in this hard time. God Bless you!

April 27, 2002 Name: Lisa Woodroff Subject: Rhabdoid angel Morning Dove Comfort Kits Hello, Zach Crawford's mother wanted us to contact our families who havelost a child to Rhabdoid Cancer. We would like to send out these kits to anyone who would like one. Please email me with your names, and address where to send it. We then will send one out to you as soon as possible. Linda Crawford will be sendingthem to David and I to distribute them as needed. I hope this email finds you all well, and hopefully these kits will be of some help to you and your family. Lisa Dear Lisa, I've had this ideafor the Rhabdoid angel families and I wanted to see what you thought of it. Since Zachary's death, I have been extensively involved in bereavement funding and resources. Through that. I have developed a memorykit for children and for adults to help with the journey thru grief.They are called Mourning Dove Comfort Kits. I am in the process of starting my own business with them as I have found they have been helpful to families.( I even found that out the most difficult way when my brother died suddenly last year and I shared them with my children and nieces and nephews). I have donated 200 to my local hospice and some to the Dana Farber Cancer Institute and they have been distributed locally. I would like to provide these to Rhabdoid families( at no charge of course) if you think they would be helpful and tactful. They are age appropriate from PreK to Grade 12.And there is one for adults. The children's kit comes in a canvas bag with fabric markers to decorate the bag, a blank journal, a stress squeeze ball, a packet of forget me not seeds to plant, markers and a stuffed animal(Beanie Baby as long as my supply lasts),and a grief workbook from Boulden Publishing. The Pre K kids get stickers, a frame and a pinwheel in place of the fabric markers, journal and flower seeds. The older kids get a Hope Focus stone and a plastic pouch with sharpie pens instead of the Beanie, fabric markers and canvas bag. The adult kit is a photo box with a candle, stone, journal or book and pen. I would love to know what you think. I have wanted to help rhabdoid families and am able through my son's fund at the Dana Farber but that is limiting me to families who are treated there. So maybe this can be my alternative. Let me know what you think. Thank you.

March 25, 2002 Name: Kathey Mashburn Location: Saltillo, MS Hello; I am Kathy, Korbin's great aunt. We met at the Hopital a lot; and I love what you have done. This is a wonderful memory. Thank you so much.

March 20, 2002 Name: Kim I pray that the Lord continues to give you strength. I know it is still hard even though it's been almost a month. I just read Korbin's story and my son was about the same age as Korbin and diagnosed and passed away near the same time. Jared was born on Oct. 21, 2000, diagnosed on Dec. 5 and passed away on Feb. 14, 2002. We are on this journey together, still asking God for strength to get through each day. I pray especially for you on March 22, as I know it will be a hard day for you just as March 14 was for me.

February 27, 2002 Name: A friend from Chayton's page Location: Iowa You are all still in our prayers and thoughts. The pain of loosing such a precious child must be overwhelming. I hope that you will find some peace. Korbin is watching over you and will lead you in the right direction. KORBIN...never forgotten.

February 27, 2002 Name: Umesh Sanjanwala Location: Jackson, MS A true fighter till the end..You will always be in our hearts... Sanjanwala Family

February 27, 2002 Name: Maxine Stegall Location: Jackson, MS We are so very sorry for your loss. Please know that we are loving you and touching you from here. Thank you for keeping us posted through these past months. Our prayers go to you and your family.

February 27, 2002 Name: Debbie Blackledge Location: Jackson, MS Please accept my deepest sympathy in the loss of precious Korbin. May the God of all comfort provide a double portion of all you and yours need for the days ahead. In some small way, may it help to know how very much others care. Most sincerely, Debbie

February 27, 2002 Name: Dawn & Darrell Anderson Location: Winthrop, MN So saddened to hear of another loss in the rhabdoid communtiy. Please know that our thoughts and prayers are with your family as well. With sympathy for what we may not know, and empathy for what we have lived, Dawn and Darrell Anderson (aka Chayton's parents)

February 27, 2002 Name: Kylee's Grandma I just went and checked all the kids and I am very sorry to hear that we have lost another. Our thoughts and prayers are with you.

February 26, 2002 Name: Hazel Willis Location: Jackson, MS I was so sadden to hear about the loss of such a precious child. He is resting now. No more pain. He is in the arms of the Almighty and now no one can harm him. Love ones, hold on and ask the Almighty to give you strength to go on. He will give it to you. Thanks for sharing this lovely web site with us. I enjoyed it. That's for sharing that precious jewel with us. May God forever keep you in His care.

February 26, 2002 Name: Meredith M Doney Hi, Please know that my heart goes out to you for the loss of little Korbin. I wished I could have gotten to know him sooner so that I could have sent him cards. He was a cute little guy and I know you'll miss him; which is only natural. Please remember all the good memories you have of him and that no one can take those from you. Take one day at a time and as time goes on life will get better looking again. It seems at first that it'll never be right again, but in time your pain will ease. I've been there many times and I know what it is to loss a loved one. I have never lost any of my children, but have lost my mother and father, two sisters and a grandson and a granddaughter. The most recent was my mom. My two sister's death's were a shock to the family, unexpected. They are the ones that took the longest to get over; in fact I'm not over the death of my oldest sister who died on October 28, 1999 yet. She was 59 and Debby was just 16 when she died of cancer in 1966. If you ever want to talk, I'm here and am willing to listen. Pleae remember him and you'll get through all of this in time. God will be with you to help you along the way. Love in Christ, Meredith M. Doney

February 25, 2002 Name: Mary Martin Location: California I am so sorry that little Korbin has gone to be a sweet Little Angel in Heaven. May the Good Lord ease your pain and ache on your loss. I'm sure he is playing with all the other Angels who have gone before him. You will be in my prayers.

February 25, 2002 Name: Joyce Wilson This has been a sad 2wks. for the Rhabdoid Families. May you know our prayers have been with you these past weeks and will continue. What a sight it must be for all the new angels to be playing together,free of pain aned suffering. Blessings to you. Tyler's Grandma Wilson

February 25, 2002 Name: Karen Koch Location: North Wales, PA With our deepest sympathy on the passing of Korbin. Your family is in our prayers.

February 25, 2002 Name: Christina A Bach Location: Jackson, MS I continue to pray for your family. Even though I can not claim to know anything about what you might be going through right now, having recently lost a loved one, I know something about the weird process we call grief. It is normal to be a little crazy right now. Reach out for help when you need it. You will know the kind of help you need. Trust yourselves as to what you need. There is no pat ''formula'' as to how to grieve. Talk to those who say things that help and don't talk to those who don't. Don't break off communication with God, even if it is to yell at Him about how unfair it all is. David did that in the Psalms. Let the grief wash up on you like waves instead of blocking it. Let it wash away like waves as well, with no guilt for the times you may enjoy a breeze he can no longer feel. Even if it takes a long, long time, learn to live again. Christina

February 25, 2002 Name: Kathy French Location: Jackson, MS My heart goes out to you on your devastating loss. You will be in my prayers.

February 25, 2002 Name: Jeanne Brown Location: Botkins, OH Korbin is free of all pain and I'm sure everyone will miss him. I know he will not be forgotten and neither will his family in my prayers. Bless you all, Jeanne

February 25, 2002 Name: Alexy Alena Michael Atlasovs Location: Russia We bring the condolences to family Korbin Brown. We not to time were not seen, but the destiny of each family is very important for us. To each person the time is assigned which he should conduct in this world. Our children they especial, they bring light in our life and learn us to be more force and cleaner. I do not want to trust that their sufferings are vain.

February 24, 2002 Name: A friend from Chayton's Page Location: Iowa I am so sorry to hear of Korbins passing. Words cannot heal your pain and grief at this time I know. Just know that you are in our prayers.

February 24, 2002 Name: Gina Colby I'm so sorry to read about your sweet Korbin's passing. I hope that your family will find peace...I know that you will all see Korbin again someday. Love, Gina

February 24, 2002 Name: Claudia Allen So very saddened to read of the death of another precious baby to this cancer. My thoughts are with your family as you go through this sad time.

February 21, 2002 Name: Nancy Sellers Location: Brandon, MS My thoughts and prayers are with you all.

February 21, 2002 Name: Nell Ricks Location: Jackson, MS Korbin, I work with your grandfather and I know he loves you very much. ''May our Lord Jesus Christ and God our Father comfort and strenghten your hearts in every good work and word.'' Wishing you the best. God Bless, Nell Ricks

February 21, 2002 Name: Nan Ainsworth Location: Jackson, MS Perhaps Korbin and the Lord are trying to send the doctor's a message. Thank you for sharing with me. There are no words to make you or your family feel better regarding your situation so I won't even try. I know you are filled with mixed emotions and your heart is breaking. Somehow we all get through these times. Please continue to keep me posted.

February 21, 2002 Name: Nancy Parkes Location: Jackson, MS I am so sorry about Korbin. He is a brave little boy. Korbin and you and your family are in my prayers.

February 18, 2002 Name: Martha Stogner Location: Terry, MS I am friend of your grandmother, Vickie. I have been in prayer for you and your family. Even though I only see pictures of you, I love you. May God bless you and your family.

February 18, 2002 Name: Tammy Collette Location: Jackson, MS I work with Korbin's grandmother Vickie. I have forwarded all the emails she sends to me to my Uncle Virgil (he's a preacher). I have also forwarded them to all my family in my address book. Everyone has responded, ''I will keep Korbin and his family in our thoughts and prayers! I wish there was something that I could do to help, but everything is in God's hands now. I hope he knows he has a wonderful grandmother that would do anything for him. I'll be praying for Korbin and his family. God Bless, Tammy

February 6, 2002 Name: Maiah & Sean Hayes Location: Byram, MS Woodard family, Hi, my name is Mariah and I work at Vermeer with Larry. I just wanted to send my prayers to Korbin and his family. Times like this is real hard on families but all you can to is pull together and pray in hopes of everything coming together once again. Mariah & Sean Hayes

February 5, 2002 Name: Christina A Bach Location: Jackson, MS It is heart wrenching to see Korbin's sweet little face next to the word ''memorial.'' It reminds me of what a brutal and violent thing cancer is. I continue to pray for Korbin and your family. God may or may not answer my prayers the way that I want Him to, but I know that He can still do miraculous things within your family.

February 5, 2002 Name: The Steenwyk Family Location: Shreveport, LA What a beautiful picture of Korbin.

February 4, 2002 Name: Karen Koch Location: North Wales, PA Hi Korbin, I love your picture with the snowman, My family has added you and your family to our prayers along with all the other Rhabdoid children and their families. My Nephew (Jake Houck) is battling this as well. My God bless you all. I will check your site again soon.

February 2, 2002 Name: Debbie Blackledge Location: Jackson, MS I visited your web site. I do understand Korbin is gravely ill, but miracles can and do happen. I can personally attest to them in the life of my family and the lives of others. I realize that the end may be just as the physicians have said. I also realize that ''SUDDENLY'' things can change and an end becomes a beginning. I choose to hold onto the latter for precious Korbin and family. Please know Korbin and family are in my prayers. Most sincerely, Debbie

January 7, 2002 Name: Nan Ainsworth Location: Jackson, MS Thank you so much for keeping us informed. Please know that I realize how difficult this is for you. My heart goes out to you and your family. Somehow God has given each of you the strength to get through this for Korbin's sake. Even though we walk through the ''Shadow of death is says HE is with us.'' I believe this with all my heart. ... I will continue to pray for you an Korbin and again thank you for you efforts in keeping me informed.

January 2, 2002 Name: Charles Bearman Location: Jackson, MS I just wanted you to know that Korbin and all of y'all have been in our prayers. Chuck

January 2, 2002 Name: Rita Bingham Location: Jackson, MS My prayers are with you and yours for a healthy New Year!

January 2, 2002 Name: Kenneth Downs Location: Greenwood, MS Thanks for the update on Korbin. I really hated to hear of his continuing decline. I pray for comfort for you and your family during these trying hours.

January 2, 2002 Name: Christina A. Bach Location: Jackson, MS I am so sorry for all the suffering that Korbin is experiencing. I have been praying for him and your family.

January 2, 2002 Name: Pat Taylor Location: Jackson, MS Thanks for the update. If it's okay with you, I will add Korbin and your family in our intercessory prayer tonight.

January 2, 2002 Name: Nan Ainsworth Location: Jackson, MS Thank you so much for the update. I realize that it is difficult for you to relate this however, sometimes talking seems to help. I wish that there was some magic word I could say that would make all things perfect for you and your family. I personally, know how hard it is to see a child in pain with no visible signs of escape. I do know that God is aware of all you and your family are going through and as HE has promised Jesus will be there with you and Korbin

January 2, 2002 Name: Gwen Smith Location: Jackson, MS I took Korbin before special prayer at my church on Sunday morning & we prayed for him. I told Christina on Friday that Korbin was alright. I am a strong believer that Jesus is a very good doctor. My pastor taught on the good doctor last night. I still haven't forgotten about Mr. Korbin.

December 26, 2001 Name: Kenneth Downs Location: Greenville, MS I read with great interest the email about your grandson. Sorry to hear about his condition, and have added [him] to my prayers.

December 17, 2001 Name: Christina A. Bach Location: Jackson, MS Thank you so much for sharing this[... Korbin's updates...]. I can tell of your great love for this little one. Please continue to let us know. many people have let me know how much they care about Korbin and your family through this tough time. Christina

December 17, 2001 Name: Linda Bounds Location: Jackson, MS Burrell, I know of little to say but that I will remember all of you prayerfully as you take this challenge one day at a time. I've had the St. Jude's experience, even though it was brief. UMMC recommended we take my son there for a study of his rare blood disorder in which his white cells disappeared. After a short study, they sent him-back to UMMC children's hospital. They were high on Dr. Jeanette Pullen here, who actually wrote programs of treatment for St. Jude's cancer patients. Our son's condition was not cancer, but with no white cells every minute counted when frequent infections set in. The drive to Memphis for antibiotic therapy would be out of the question. Mike died in 1981 (age 15) after battling for three years. During that time we knew other children who had successful treatments for cancers at St. Jude's, and we made it our commitments to be regular donors to that wonderful facility. I am sending a gift per your suggestions, and any other thing you could possibly think of is just a phone call away. My prayers, Linda Bounds

December 17, 2001 Name: Rita Bingham Location: Jackson, MS Korbin sounds like a ''superstar''. Children are such a blessing! Remember .... ''in all thy ways, acknowledge him and he'll direct thy path!''

December 17, 2001 Name: Tanya T. Funchess Location: Jackson, MS ... I wanted to say I will keep your grandson in my prayers. God Bless your Family.

Korbin Caillou Brown	Atypical Teratoid Rhabdoid Tumor
Dec 27, 2001 - Feb 22, 2002	St Jude's Children's Research
Biography	Rhabdoid Kids Link
Gallery	Stories and Faces
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